Adolescentes com osteogênese imperfeita - qualidade de vida

Adolescents with osteogenesis imperfecta - quality of life

Authors

  • Antilia Januária Martins Doutora em Saúde da Criança e da Mulher. Tecnologista em Saúde do Instituto Nacional de Saúde da Mulher, da Criança e do Adolescente Fernandes Figueira/Fiocruz. Rio de Janeiro, RJ, Brasil.
  • Mônica Rodrigues Campos Doutora em Saúde Coletiva. Professora Titular do Departamento de Ciências Sociais da Escola Nacional de Saúde Pública Sérgio Arouca/ Fiocruz. Rio de Janeiro, RJ, Brasil
  • Juan Clinton llerena Jr Doutor em Ciências Biológicas. Pesquisador Titular do Instituto Nacional de Saúde da Mulher, da Criança e do Adolescente Fernandes Figueira/Fiocruz. Rio de Janeiro, RJ, Brasil.
  • Ana Helena Rotta Soares Doutora em Saúde da Criança e da Mulher. Rio de Janeiro , RJ, Brasil

DOI:

https://doi.org/10.67440/ahj.v11i1.460

Keywords:

Quality of life, adolescent, genetics, osteogenesis imperfecta.

Abstract

Objective: The objective of this study is to evaluate the quality of life (QoL) among adolescents with Osteogenesis
Imperfecta enrolled in the bisphosphonate (pamidronateand alendronate) treatment program run by the Instituto Fernandes
Figueira/Fiocruz. Methods: This descriptive exploratory study deployed a quantitative approach, using the World Health
Organization Quality of Life Assessment Instrument (WHOQOL-100) and a socio-demographic questionnaire. Results:
Among these 37 adolescents, 56.8% were female, 62.2% were 15 years old or more, 51.4% had Type I OI and 59.4%
were on out-patient treatment taking alendronate. The socio-demographic characteristics revealed an association between
adolescent education and OI type, as well as between maternal education and treatment regimens. The religiosity /
spirituality / personal beliefs and social relationships items posted the highest scores (77.6 and 73.7 respectively) with the
environment scoring lowest (64.9). Conclusion: The results indicate that adolescents with OI are satisfi ed with their QoL in
general (69.3), mainly among those with type I (77.8) and under outpatient treatment (73.4)

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Published

2014-02-22

How to Cite

Januária Martins, A., Rodrigues Campos, M., llerena Jr, J. C., & Rotta Soares, A. H. (2014). Adolescentes com osteogênese imperfeita - qualidade de vida: Adolescents with osteogenesis imperfecta - quality of life . Adolescência E Saúde, 11(1), 7–17. https://doi.org/10.67440/ahj.v11i1.460

Issue

Vol. 11 No. 1 (2014): Vol. 11 No. 1 (2014)

Section

Original Articles

License

Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 International License.